10. I'm afraid to be on medication because of the side effects.
Yes I know that without the medication it's more likely I will be ill
9. Taking the pills will remind me of what I did to get HIV in the first
place which will then make me depressed and then I'll probably need a pill for
that too. (Yes...I know there are medications that help me live longer- keep reading)
8. I'm afraid to lose weight because I don't want to "look sick" and I've
lied to myself that I like having "muffin top". I really don't. I like curves
and all but geesh! (I've GOT to lose like 20 pounds just for heart reasons period, point blank. I'll be damned if I go through all of this getting used to HIV meds just to fall dead of heart disease or diabetes!)
7. I'm afraid that I will never find a doctor that I can trust, but will
encounter pill pushers instead. (And I know there are good doctors out there, I just have to FIND them!!)
6. I'm afraid that even with the medication I will stay sick and die from
side effects. (Yes, my fears contradict each other but I'm just telling the thought process of each random fear)
5. I don't trust people to tell me what is good for my body unless they are
truly in my situation. (I want a doctor or Case Manager that I have to be HIV positive. I mean, I dont want them to get it if they don't have it already but I need someone I can relate to! Just because you've worked in the field for 15+ years doesn't help me when I have to go home to my life and you get to clock out without it permanently affecting you. And for the love of all that is Holy, I know that people that have been in the HIV/AIDS field are truly affected by the effect the virus has on people, but at the end of the day, I need your T-cells to understand my T-cells, that's all I'm saying.)
4. I'm afraid...kind of...that I will have to settle for a man I don't love
just to feel loved because of my status. (I'm really not going to entertain this with an explanation because if it wasn't HIV, it would be something else. I'm terrified of relationships period. There.)
3. I'm simply afraid of change. Explaining to people what T-cells and CD4
counts are is one thing. Waiting for the doctor to tell you what yours is, is
another. (Just to clarify things, when I was diagnosed, the availability of the medications that bring your viral load to undetectable weren't being offered and I didn't hear of these until recently...as in MAYBE two years ago? So, it's still hard to wrap my mind around that to how I was treated when I was first dianosed.)
2. I'm afraid the medication is going to make my breath stink and no one
will tell me. I'm serious. (Yeah, I know that's what breath mints and toothpaste is for, but I've been around some folks where that simply isn't cutting it. I politely offer them a mint condiment, they usually decline and I'm left feeling like my nose hairs have evaporated. Perhaps this isn't due to medication *shrug* my opinion).
1. I'm afraid of being dependant on something that a man in a lab created
in order for me to live. (A man that gets paid a pretty little penny for every pill that I swallow and I'm not going into conspiracy theories or whatnot, I'm just saying...I know that science has advanced leaps and tremendous bounds for me to even be able to sit here and blog this foolishness, but I'm only human.)The bottom line is I'm one distrusting, childish, insecure little girl. I'm not apologizing for it. Not until I get over it at least. There are more issues in between the lines, but those are the things that honestly run through my head when I get a fever, when another migraine forces me to hibernate in my room or when I'm so achy I can't stand to have my clothes touch my skin.